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About Us



PEARL OF PEOPLE WITH DOWN SYNDROME FOUNDATION (PPDSF) was established on 24th February 2017 as a Non-Governmental Organization with Reg No.00NGO/0009063.

(Prior to this time it existed from 2011 under the name Penny Aika Down Syndrome Foundation). PPDSF is a representative organization of Down Syndrome persons in Tanzania Mainland.

Vision Statement: We envision an inclusive society where people with Down Syndrome are treated in such a way that their basic human rights and needs are sustained to improve their livelihood

Mission Statement: The organization is committed to enhance high quality social related services to people with Down syndrome though various coordinated approaches and engagement of different Stake-holders including Government private sector. Civil society organizations and development partners through awareness creation, Advocacy and capacity building at different levels in the community.

i. Tanzania Federation of Disabled People's Organization (SHIVYAWATA)
ii. Africa Down Syndrome Network (ADSN)
iii. Down Syndrome International (DSi)

Some Videos


Advocating for Inclusion for People with Down Syndrome

Advocating for rights of People with Down Syndrome Tanzania

World Down Syndrome Day 2018 - TANZANIA

World Down Syndrome Day 2017 - TANZANIA

Understanding Down Syndrome: We are Differently Abled

Understanding Down Syndrome


The journey started in January 2019, by doing advocacy to various Government Ministries. One of which was the Ministry of Health, Community Development, Gender, Elderly and Children [MoHCDGEC] who we have a Memorandum of Understanding between us.

In October our efforts were joined by the DS Self Advocate from Uganda who together with the Tanzania’s Self Advocate, and parents visited several Government Ministries to explain more about the need for the Government to address the human rights needs of Down syndrome persons.

Then a Breakthrough! The MoHCDGEC through the Deputy Prime Minister, directed the Research Institution [National Institute for Medical Research - NIMR] to team up with PPDSF to conduct research on Situational Analysis of Down Syndrome Persons in Tanzania Mainland.

Our future plan is to also sign a Memorandum of Understanding with the Ministry of Education, Science & Technology [MoEST] to enable Down Syndrome people’s access Post Primary Education